Executive Director, Patient Services
Company: uniQure N.V.
Location: Lexington
Posted on: July 1, 2025
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Job Description:
uniQure is dedicated to bring innovative therapies for unmet
medical needs to patients. In doing so each function in uniQure is
directly or indirectly responsible for the lives of patients. This
responsibility should be part of our day-to-day working life by (i)
living up to high quality standards and (ii) by recognizing the
sense of urgency in areas of high medical need. Through pioneering
gene therapy, including our investigational candidate AMT-130 for
Huntington’s Disease, we’re preparing for our first commercial
launch — and seeking a passionate, strategic leader to help build a
best-in-class patient experience program from the ground up. This
is a unique opportunity to shape a pioneering patient services
offering and deliver a life-changing treatment experience to
patients and families facing Huntington’s Disease. Reporting to the
Head of US Market Access & Patient Services, the Executive Director
of Patient Services will lead the development, launch, and
continuous evolution of uniQure’s comprehensive US Patient Services
function. This role is pivotal in supporting the launch of AMT-130
and future pipeline products. The ideal candidate is a
mission-driven, patient-focused leader with extensive experience in
rare, neurological, or advanced therapeutic areas — energized by
building scalable service strategies that deliver compassionate,
seamless, and personalized support experiences for patients and
healthcare providers. Key result areas (major duties,
accountabilities and responsibilities) Strategy & Leadership • Lead
the design, development, and execution of the US Patient Services
strategy for AMT-130, aligned with uniQure’s mission. • Develop a
patient-centered model including case management, patient
education, financial support, care coordination, and ongoing
engagement. • Serve as a core member of the commercial leadership
team, providing strategic insight on healthcare ecosystem needs.
Program Development & Management • Establish and oversee
high-touch, personalized support services for the Huntington’s
Disease and gene therapy communities. • Develop comprehensive
affordability strategies, including co-pay and patient assistance
programs. • Manage the selection, contracting, and performance of
third-party service providers. Cross-Functional & External
Collaboration • Partner closely with Market Access, Marketing,
Legal, Finance, and other functions for seamless patient service
integration. • Collaborate with advocacy groups, caregivers, and
healthcare providers to ensure patient voices shape service
programs. • Continuously incorporate market insights and feedback
into service enhancements. • Partner closely with IT to align on
Architecture, Cyber Security and Compliance on selection and
management of the patient services platform. Operational Readiness
& Compliance • Build streamlined and innovative infrastructure,
processes, and systems for a successful gene therapy launch and
future indications. • Define and track key performance indicators
(KPIs) to optimize service performance and inform decisions. •
Ensure compliance with laws, regulations, and corporate standards
(HIPAA, HITECH, CMS policies). Leadership & Team Development •
Recruit, mentor, and lead a high-performing Patient Services team,
fostering a culture of compassion, integrity, and innovation.
Qualifications • Bachelor’s degree required; advanced degree (MBA,
MPH, MHA, MSW) preferred. • 15 years in pharmaceutical/biotech,
including 10 years in Patient Services leadership roles with rare,
neurological, or advanced therapy experience; gene therapy
experience is a strong plus. • Expertise in patient support
programs (case management, education, affordability) and US
healthcare payer/reimbursement systems. • Proven success building
and scaling high-performing teams and managing third-party service
providers. • Exceptional strategic, operational, and interpersonal
leadership skills. • Deep passion for improving the lives of
patients with rare, neurodegenerative diseases.
Keywords: uniQure N.V., Marthas Vineyard , Executive Director, Patient Services, Healthcare , Lexington, Massachusetts
